The best defense against twin to twin transfusion syndrome is being educated. Whether you just found out you are pregnant with multiples or you actually are diagnosed with TTTS, being educated will empower you to fight TTTS with strength and a plan.
Being told that you are carrying twins or triplets is truly an exciting and blessed moment. You have feelings of being special or chosen. However, when you receive the news that the babies have twin to twin transfusion syndrome (TTTS), you are thrown immediately into a high risk medical world that no one ever discusses and rarely prepares for in advance. Just days or weeks earlier, everything was fine and you were happy. Now, suddenly, something is wrong.
The Twin to Twin Transfusion Syndrome Foundation is here to provide you with immediate information about TTTS including the meaning of the medical terms, the various treatments available, premature labor and other complications of multiple pregnancy, and the value of bed rest and dietary supplements. You will not be alone. We are all mothers and fathers who have experienced TTTS and are here to help you. Our hope is that because of our personal experiences, along with the expertise of our medical advisory board, we can make a difference in your behalf.
There is considerable hope for your babies because of research on TTTS over the last few decades. However, we must again stress the importance of becoming informed yourself about TTTS and the treatment options that may or may not be made available to you. This information will help you to make the best possible choices for your babies when you work with your medical team. Clear your mind and follow your heart. We urge you to create a medical plan of action, and then prepare to act upon it immediately!
On behalf of the organization, please remember that we are always here for you. I started The TTTS Foundation as a promise to my own twins, Matthew and Steven, so that no parent would ever hear the words, 'I'm sorry, there is nothing that can be done.' There is always something that can be done. You and your babies are being prayed for.
After reading through this educational section, you can go to the following tttsfoundation.org website for more in depth information. At anytime on the tttsfoundtaion.org website you want to return back to the worldtttsawarenessday.org site, just click the world awareness day logo on the right column.
Founder and President
The Twin to Twin Transfusion Syndrome Foundation